Dr. Stein is the founder of New England Neurodevelopment, LLC and former Co-Director of the Down Syndrome Program at Boston Children’s Hospital specializing in neuropsychological testing, assessment of neurodevelopmental disorders, and behavioral and cognitive behavioral therapy. His book “Supporting Positive Behavior in Children and Teens with Down Syndrome” provides effective guidelines and helpful tools for parents to change and manage their child's behavior. Dr. Stein has served on the faculty of Boston Children’s Hospital as well as an Instructor at Harvard Medical School. He has shared his knowledge and findings regarding neurodevelopment and related disorders through international speaking engagements as well as through scholarly articles for medical publications such as the Journal of Developmental and Behavioral Pediatrics. Dr. Stein has been honored for his work on several occasions including being named Distinguished Speaker Series Lecturer by The Children's Center for Communication at the Beverly School for the Deaf in 2019.

Can you tell us about the idea behind your book “Supporting Positive Behavior in Children and Teens with Down Syndrome”?D: The book was the result of my working with so many families of children with Down syndrome but never being able to help everyone. My waiting list was so long and I felt I had some simple ideas that really helped. So I wanted to write the book to share those ideas as widely and efficiently as possible.

What kind of research was required to write this book?D: The main research was my clinical work. I saw so many children and families with Down syndrome that I quickly began to really understand the challenges and what interventions work well. I also read a great deal of the neuroscience research in Down syndrome. I then fused the neuroscience research specific to Down syndrome with my own behavioral training to hone these methods. They are based on sound and longstanding behavior practices with some tweaks to focus on Down syndrome.

What can the reader gain by reading this book?D: My main goal is to improve understanding. When families understand the cause of these behaviors, they are better able to empathize and to be patient and thoughtful in their response. In addition, the book offers lots of helpful tools and strategies that families can apply to their own needs.

How important is the role of families in promoting positive behavior?D:  It is the most crucial component. Kids with DS spend most of their time at school and, especially now, at home. If families can improve their interactions, behavior will also improve.

What is one thing you love about your profession?D:  I love making a meaningful difference in someone’s life. It never gets old. I love hearing from families that they are happier and less stressed. I love receiving calls and emails telling me how well kids and families are doing.

What can be some effective ways to promote awareness of Down syndrome?D:  Being out in the world and showcasing all of the positive things that this group of people do is the best way. When it is safe again, I hope that children and families with Down syndrome will continue to be a big presence in our communities.

What is your suggestion for families of children with disabilities to empower their children?D: Teach kids to be self-advocates. Teach them to feel comfortable asking for what they need. And as kids get older, make sure they learn skills. Job skills and life skills such as self-care are crucial to independence. We often worry too much about academics—the functional skills are what really make the most lasting difference in someone’s life.

Where can our readers purchase your book?D:  Please go to www.WoodbineHouse.com. They are a wonderful group of people who publish books only for the disability community.